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Author: SOwens Created: Friday, April 03, 2009
Thankful for the Journey is a website designed for and written by caregivers, patients and medical professionals. We are an independent website . Our only agenda is to help meet the needs of caregivers, patients, family and friends of those facing a life threatening illnesses. Thankful for the Journey is a place that can happen when compassion and caring meet the technology of today and tomorrow.

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When principles that run against your deepest convictions begin to win the day, then battle is your calling, and peace has become sin; you must, at the price of dearest peace, lay your convictions bare before friend and enemy, with all the fire of your faith.

 

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It takes a lot of courage to release the familiar and seemingly secure, to embrace the new. But there is no real security in what is no longer meaningful. There is more security in the adventurous and exciting, for in movement there is life, and in change there is power.

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You probably would have to ask each lab because I am sure there is a method to the madness. A problem, at least maybe for doctors, is that health care consumers are becoming educated on their own health.

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Many of us who face Cushing’s know what happens to our vitamin D levels. They drop and we experience the problems caused by the low levels. Many of us fight a lowered immune system and low calcium because of it.

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This new drug caught my attention. I have a disease that suppresses the immune system. The longer it goes on, the worse the immune system can become. Naturally I am quite interested in anything that could possibly help.

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I am all for treating others with dignity and respect, but that works both ways. Sometimes, I think we have to shake the tree’s to get the nuts out of our way. I have been through 20 something doctors. Most of them didn’t really know Cushing’s from couch cushions.

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 Like the saying goes, “It is choice, not chance, that determines your destiny.” We control how we react to bad situations. Life isn’t about fair or unfair. Life is about the ability to choose.

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For as long as it has been described, Cushing’s syndrome has presented physicians with a problem. Harvey Cushing first described it in 1932, and the diagnosis, differential diagnosis and treatment of Cushing’s have remained a major challenge for endocrinologists ever since.

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 Normal everyday functions that we do can evaporate in a twinkling of an eye. We don’t remember how to feel alive and learn to live in the moment of the pain and ill feelings. We forget to live.

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How do you know that all you have worked for is really what you need? I’m not talking about my work life, my social life or even my family life. I am talking about my life and living with a life threatening illness.

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